ME Awareness Week 2026
As the 12th May is the first day the newly elected parliament will meet, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week, which this year runs from the 11th...
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#MEAction UK is Fighting to Protect the Most Severely Ill - Join our campaign to lobby your MP today!
The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service.They are dying and they need help. They need a specialised service to be commissioned now! Onl...
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Very severe service planning paused
The DHSC have written to us to say that they have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest. The reasons given by the DHSC incl...
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Survey for new ME blood test launches
MEAction UK is working with the research team at the University of East Anglia (UEA) Medical School to assist in developing a research application to be submitted to the Medical Research Council (MRC)...
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MEAction UK needs new trustees!
MEAction UK is excited to share this opportunity to become part of our Board of Trustees!This is an opportunity to use your skills to support the growth of a grassroots organisation. Candidates should...
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Christmas Holiday Dates
ME support#MEActionME During the HolidaysIt’s that time of year again. The weather turns cold (or hotter for our southern hemisphere friends) and holiday expectations start piling on from commercial...
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#MEAction Scotland's Summary of Health Board Proposals for Funding
Following the Scottish Government's allocation of the £4.5 million of funding for Long Covid, ME and similar conditions, Health Boards were requested to submit proposals outlining how they intended t...
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Independent Review of Adult Disability Payment in Scotland: Final Report
#MEAction Scotland welcomes the findings of the recently published review of the Adult Disability Payment benefit and looks forward to seeing the recommendations implemented by the Scottish Government...
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#MEAction UK’s response to the DHSC’s ME/CFS Delivery Plan
MEAction UK are members of the Task and Finish group and have campaigned throughout the development of the Final Delivery Plan to make sure the voices of people with ME were heard. We are very d...
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Millions Missing Scotland raises a red alert
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh. The rally sent a clear and urgent message to the Scottish Government to...
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