Tell Your Doctor That GET Is Gone
The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical s...
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How The Media Reported On The UK’s New ME/CFS Guideline
Media coverage of the publication of the new NICE guideline in the UK was impressive in its geographical spread and range of publications who reported on the story. The volume of articles shows the im...
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Scottish Government must respond to new NICE ME/CFS guideline
The new NICE ME/CFS guideline sets out the treatment for ME in England and Wales, but is not mandatory in Scotland. The Scottish Government has made it clear that it is waiting for this new guideline ...
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Thousands Living With Chronic Illness ME Are Listened To After Years Of Fighting To Be Heard – Press Release
Press ReleaseAfter 14 years of recommending graded exercise therapy to people with myalgic encephalomyelitis (ME), the National Institute for Health and Care Excellence (NICE) has removed this harmful...
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Final NICE guideline published - find out the big news
The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline on and we are delighted that they have finally listened to the ME community in several key areas.NIC...
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“The Treatment Of ME Has Been Dickensian” – NICE’s Roundtable On The ME/CFS Guideline
August 2021. Instead, at the 11th hour, they “paused” publication. Exactly two months after the planned publication date, on 18th October, they held a roundtable, bringing together the Royal...
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An update on the NICE roundtable from #MEAction UK
#MEAction UK shares the dismay and confusion of many in the ME community about the decision by NICE to pause the publication of the ME/CFS guideline at the very last minute. Our volunteers have ...
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NICE Announces Roundtable Event To Ensure Implementation Of ME/CFS Guideline
NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and...
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Forward-ME : RESPONSE TO ‘PAUSE’ IN NEW NICE GUIDELINES
As part of the coalition Forward-ME, MEAction UK is pleased to share below, the latest statement from the group regarding this week’s pause by NICE of new Guideline publication.ME CHARITIES BAFFLED ...
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Sign Our Petition: Publish The NICE ME/CFS Guideline Now.
We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. Sign the petitionOn 18th August 2021, NICE were due to publi...
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