Press ReleaseAfter 14 years of recommending graded exercise therapy to people with myalgic encephalomyelitis (ME), the National Institute for Health and Care Excellence (NICE) has removed this harmful...
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The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline on and we are delighted that they have finally listened to the ME community in several key areas.NIC...
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August 2021. Instead, at the 11th hour, they “paused” publication. Exactly two months after the planned publication date, on 18th October, they held a roundtable, bringing together the Royal...
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#MEAction UK shares the dismay and confusion of many in the ME community about the decision by NICE to pause the publication of the ME/CFS guideline at the very last minute. Our volunteers have ...
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NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and...
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As part of the coalition Forward-ME, MEAction UK is pleased to share below, the latest statement from the group regarding this week’s pause by NICE of new Guideline publication.ME CHARITIES BAFFLED ...
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We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. Sign the petitionOn 18th August 2021, NICE were due to publi...
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There is widespread anger in the ME community today as NICE announced that it will not be publishing their finalised guideline on ME/CFS after pressure from sections of the medical establishment.At #M...
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On 10th November 2020, the consultation on the draft ME/CFS Guideline was launched by the National Institute for Health and Care Excellence (NICE). Since then, a team of #MEAction UK volunteers have w...
Read More#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Pe...
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