The new NICE ME/CFS guideline sets out the treatment for ME in England and Wales, but is not mandatory in Scotland. The Scottish Government has made it clear that it is waiting for this new guideline ...
Read More
Press ReleaseAfter 14 years of recommending graded exercise therapy to people with myalgic encephalomyelitis (ME), the National Institute for Health and Care Excellence (NICE) has removed this harmful...
Read More
The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline on and we are delighted that they have finally listened to the ME community in several key areas.NIC...
Read More
August 2021. Instead, at the 11th hour, they “paused” publication. Exactly two months after the planned publication date, on 18th October, they held a roundtable, bringing together the Royal...
Read More
#MEAction UK shares the dismay and confusion of many in the ME community about the decision by NICE to pause the publication of the ME/CFS guideline at the very last minute. Our volunteers have ...
Read More
NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and...
Read More
As part of the coalition Forward-ME, MEAction UK is pleased to share below, the latest statement from the group regarding this week’s pause by NICE of new Guideline publication.ME CHARITIES BAFFLED ...
Read More
We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. Sign the petitionOn 18th August 2021, NICE were due to publi...
Read More
There is widespread anger in the ME community today as NICE announced that it will not be publishing their finalised guideline on ME/CFS after pressure from sections of the medical establishment.At #M...
Read More
On 10th November 2020, the consultation on the draft ME/CFS Guideline was launched by the National Institute for Health and Care Excellence (NICE). Since then, a team of #MEAction UK volunteers have w...
Read More