There is widespread anger in the ME community today as NICE announced that it will not be publishing their finalised guideline on ME/CFS after pressure from sections of the medical establishment.At #M...
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On 10th November 2020, the consultation on the draft ME/CFS Guideline was launched by the National Institute for Health and Care Excellence (NICE). Since then, a team of #MEAction UK volunteers have w...
Read More#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Pe...
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The National Institute for Health and Care Excellence (NICE) has released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and ...
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#MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by graded exercise therapy. We are calling on him to ensure all advice for people with ME, and t...
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A new education module designed to teach healthcare professionals about ME has been released.Send the new module to your GP, using our email template.The module was created by the CMRC Medical Educati...
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A short film by people with ME and experts, warning of the long term consequences viruses can have.Thank you to Professor Chris Ponting and Dr Nina Muirhead for their expert testimony, and to the many...
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In light of an oncoming wave of people experiencing post-viral complications and potentially post-viral ME, telling our story is more important than ever. “I would expect that people who ...
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As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a gia...
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The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do. The ME co...
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