On 25th May 2018, NICE held an engagement workshop with stakeholders, looking at the draft scope for the new guideline on ME/CFS. This is the second workshop held by NICE in which stakeholders were gi...
Read MoreWestminster Hall Debate on the PACE trial and its effects on people with ME:an analysis of the response from Caroline Dinenage MP, Minster of State for CareOn the 20 February 2018 a debate was held in...
Read MoreThe Time for Unrest event at the Scottish Parliament on 30th January was an opportunity to raise awareness of Myalgic Encephalomyelitis (ME) among Members of the Scottish Parliament (MSPs), and ask th...
Read More
Tuesday 24th October, 2017 will long be remembered as a significant day for anyone involved in ME politics.BackgroundDespite knowing the issues facing people with Myalgic Encephalomyelitis (ME) should...
Read MoreUPDATEOn 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new g...
Read MoreDetails of the EventMillions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometime...
Read More#MEAction co-founder Jennifer Brea at the #MillionsMissing protest in Washington, DC, May 25, 2016“Okay awesome. Wow this is amazing. As soon as I pulled up to the square here I just start...
Read MoreOn Wednesday, May 25, ME/CFS patients, caregivers and advocates in nine cities around the world gathered for a global day of action to demand equal treatment and an end to the stigma of the diagnosis ...
Read MoreA petition for more biomedical research funding for ME/CFS that was started in January is only 2,000 signatures short of the 10,000 needed to force the UK government to issue a response. The...
Read Moref you’d like to get involved in International M.E. Awareness Month but don’t know where to start, or are simply too unwell to get stuck in, then this may be the perfect place to start.I am very pl...
Read More