The National Institute for Health and Care Excellence (NICE) is in the process of updating its guideline for Myalgic Encephalomyelitis by October 2020. #MEAction UK has issued a response to the s...
Read MoreParliament Plays NICE#MEAction UK was thrilled to watch the longest ever UK parliamentary debate about ME on 21st June, after working so hard alongside so many others to make it happen.The three hour&...
Read More
Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for ME. MPs called for the immediate removal of...
Read More
#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland. Not all ...
Read MoreOn 25th May 2018, NICE held an engagement workshop with stakeholders, looking at the draft scope for the new guideline on ME/CFS. This is the second workshop held by NICE in which stakeholders were gi...
Read MoreWestminster Hall Debate on the PACE trial and its effects on people with ME:an analysis of the response from Caroline Dinenage MP, Minster of State for CareOn the 20 February 2018 a debate was held in...
Read MoreThe Time for Unrest event at the Scottish Parliament on 30th January was an opportunity to raise awareness of Myalgic Encephalomyelitis (ME) among Members of the Scottish Parliament (MSPs), and ask th...
Read More
Tuesday 24th October, 2017 will long be remembered as a significant day for anyone involved in ME politics.BackgroundDespite knowing the issues facing people with Myalgic Encephalomyelitis (ME) should...
Read MoreUPDATEOn 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new g...
Read MoreDetails of the EventMillions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometime...
Read More