#MEAction Scotland Volunteers in Scottish Parliament
Photo shows Ben MacPherson speaking at #MillionsMissing outside the Scottish Parliament
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#MEAction Scotland publishes refreshed strategic priorities
#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026, in anticipation of the expected Scottish Parliament elections in May 2026.We continue to work towards ou...
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Postcards to Doctors for #MillionsMissing 2024
The theme for #MillionsMissing this year is #TeachMETreatME. This global #MEAction initiative aims to raise awareness among medical professionals of the challenges faced by those with myalgic encephal...
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#MEAction UK's email/letter to Andrew Gwynne MP
To: Andrew Gwynne, Under Secretary of State for Public Health and PreventionSubject: Treatment of Very Severe ME Email: psandrewgwynne@dhsc.gov.ukDear Andrew Gwynne, Thank you for being an a...
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Questions to Ask Prospective MPs About ME/CFS
In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people...
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#MEAction UK’s Letter To The Telegraph
In Judith Woods’ Comment piece on 2nd February 2024, ‘28-year-old Lauren Hoeve died by euthanasia – to a degree, I understand her pain’ she boldly asserts that a great deal of Lauren’s angui...
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#MEAction UK’s Letter To The BBC Over The Show Dragons’ Den
We are writing to express our deep concerns about a segment featured on an episode of Dragons’ Den, which aired on BBC1 on Jan 18th 2024. The episode in question showcased a product “Acu Seeds” ...
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#MEAction UK and Scotland update prevalence figures based on new data
Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based on a recent US survey.Unfortunately, all prevalence estimates for ME are of limited accu...
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What Primary Care Practitioners Need To Know About The New NICE Guideline For Myalgic Encephalomyelitis/Chronic Fatigue Syndrome In Adults November 16, 2022
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School ...
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#MEAction UK’s Response to DHSC (My full reality: the interim delivery plan on ME/CFS)
As a charity we were pleased to be able to submit a longer response than is possible using the online survey. Below is the text as submitted to the DHSC. IntroductionThis response is submitted on...
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