Over 2,000 people with ME/CFS, carers and health professionals in the UK engaged with the recent survey from the ME/CFS Priority Setting Partnership. Through three stage...
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Two NICE ME/CFS guideline committee members joined #MEAction for a community call, to provide their insight into the guideline process and answer questions.Adam Lowe is a person with ME and has been s...
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On November 12th, just a few days after our launch of the Dear Doctor Campaign, @NICEGetInvolved retweeted our campaign and shared their thanks in our work to educate the medical establishment about t...
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The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical s...
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The new NICE ME/CFS guideline sets out the treatment for ME in England and Wales, but is not mandatory in Scotland. The Scottish Government has made it clear that it is waiting for this new guideline ...
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The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline on and we are delighted that they have finally listened to the ME community in several key areas.NIC...
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#MEAction UK shares the dismay and confusion of many in the ME community about the decision by NICE to pause the publication of the ME/CFS guideline at the very last minute. Our volunteers have ...
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On 10th November 2020, the consultation on the draft ME/CFS Guideline was launched by the National Institute for Health and Care Excellence (NICE). Since then, a team of #MEAction UK volunteers have w...
Read More#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Pe...
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The National Institute for Health and Care Excellence (NICE) has released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and ...
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