DHSC Released A New Progress Report
DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can ...
Read MoreNews
#MEAction Scotland Responds to Government's Survey of Health Boards
On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health Boards to understand delivery of ME services and implementation of the updated NICE gu...
Read More
The DHSC Have Released Details Of Their Process In The Development Of A Delivery Plan On ME
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for Eng...
Read More
Apply To Join The UK’s ME/CFS Priority Setting Workshops
Over 2,000 people with ME/CFS, carers and health professionals in the UK engaged with the recent survey from the ME/CFS Priority Setting Partnership. Through three stage...
Read More
NICE Committee Member Community Call Review
Two NICE ME/CFS guideline committee members joined #MEAction for a community call, to provide their insight into the guideline process and answer questions.Adam Lowe is a person with ME and has been s...
Read More
New Black British Support Group Seeks Members With ME And Long Covid
Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis...
Read More
NICE Retweeted #MEAction UK’s Dear Doctor Campaign!
On November 12th, just a few days after our launch of the Dear Doctor Campaign, @NICEGetInvolved retweeted our campaign and shared their thanks in our work to educate the medical establishment about t...
Read More
Tell Your Doctor That GET Is Gone
The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical s...
Read More
How The Media Reported On The UK’s New ME/CFS Guideline
Media coverage of the publication of the new NICE guideline in the UK was impressive in its geographical spread and range of publications who reported on the story. The volume of articles shows the im...
Read More
Scottish Government must respond to new NICE ME/CFS guideline
The new NICE ME/CFS guideline sets out the treatment for ME in England and Wales, but is not mandatory in Scotland. The Scottish Government has made it clear that it is waiting for this new guideline ...
Read More