New APPG On ME For The UK – Meeting
Following the success of the last parliamentary debates on myalgic encephalomyelitis (ME), Carol Monaghan MP is reviving the All-Party Parliamentary Group (APPG) on ME. After well attended Westmi...
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ME Services In The UK Not Fit For Purpose
A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose. Areas investigated included:Management strategiesExperienc...
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NICE Called For Evidence: Read #MEAction UK’s Response
The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this they issued a call for evidence relating to three topics. #MEAction UK has...
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NICE Call For Evidence On ME Guidelines
The National Institute for Health and Care Excellence (NICE) have put out a call for evidence in relation to the ongoing update of their ME/CFS guidelines, due to be published in October 2020. This is...
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NICE Drag Their Feet On Stopping The Harm Caused By GET And CBT
As part of our ongoing advocacy work, #MEAction UK has been campaigning for the National Institute for Clinical Excellence (NICE) to update the current ME guidelines.Updated ME/CFS guidelines are due ...
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GET And CBT Are Not Safe For ME – Summary Of Survey Results
#MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET SurveyTopline findingsA new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a la...
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Historic Parliamentary Debate Shaped By People With ME
On Thursday 24th January 2019 a historic debate took place. Over 40 MPs from across the political divide sat in the House of Commons to debate a motion on myalgic encephalomyelitis (ME), with 27 ...
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All I Want For Christmas Is #ScienceNotStigma
This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and Care Excellence (NICE, the public body responsible for U...
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#MEAction Scotland's Petition: Scottish Health Secretary gives evidence
On Thursday, 8th November, the Scottish Parliament Public Petitions Committee met to review evidence submitted in support of various petitions, including #MEAction’s petition: PE01690 Review Treatme...
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NICE Appoints Committee Rife With Bias – Take Action!
What’s been happening at NICE? The National Institute of Clinical Excellence (NICE) is re-writing its guidelines on ME/CFS. Health professionals in the UK base their care of people with ME on t...
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