A petition for more biomedical research funding for ME/CFS that was started in January is only 2,000 signatures short of the 10,000 needed to force the UK government to issue a response. The...
Read Moref you’d like to get involved in International M.E. Awareness Month but don’t know where to start, or are simply too unwell to get stuck in, then this may be the perfect place to start.I am very pl...
Read MoreOllie Cornes sitting with the printed PACE petition. He has been sick for 17 years.#MEAction has sent an 11,000-signature petitionto The Lancet, calling for the retraction of “misleading�...
Read MoreVirology Blog today published an open letter from six leading scientists calling on The Lancet to seek an independent re-analysis of data from the controversial PACE trial.The Lancet published th...
Read MoreThe Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to...
Read MoreIn wake of David Tuller’s investigation, PACE investigators publish follow up studyLast week, journalist David Tuller published a four-part investigative piece on the 2011 PACE trial, a&nb...
Read MoreHealth scientist and New York Times published journalist David Tuller today launched a damning critique upon the UK’s £5 million PACE trial in an article published on the popula...
Read MorePeople with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research t...
Read MoreThe UK’s NHS wants to hear from you! Help shape Myalgic Encephalomyelitis researchThe UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and me...
Read MoreJuliet Chenery-Robson is a freelance photo-journalist and editor in the UK. She had to put aside her career and become a full time caretaker when her daughter developed ME at age 13.Robson has sp...
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