UPDATEOn 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new g...
Read MoreDetails of the EventMillions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometime...
Read More#MEAction co-founder Jennifer Brea at the #MillionsMissing protest in Washington, DC, May 25, 2016“Okay awesome. Wow this is amazing. As soon as I pulled up to the square here I just start...
Read MoreOn Wednesday, May 25, ME/CFS patients, caregivers and advocates in nine cities around the world gathered for a global day of action to demand equal treatment and an end to the stigma of the diagnosis ...
Read MoreA petition for more biomedical research funding for ME/CFS that was started in January is only 2,000 signatures short of the 10,000 needed to force the UK government to issue a response. The...
Read Moref you’d like to get involved in International M.E. Awareness Month but don’t know where to start, or are simply too unwell to get stuck in, then this may be the perfect place to start.I am very pl...
Read MoreOllie Cornes sitting with the printed PACE petition. He has been sick for 17 years.#MEAction has sent an 11,000-signature petitionto The Lancet, calling for the retraction of “misleading�...
Read MoreVirology Blog today published an open letter from six leading scientists calling on The Lancet to seek an independent re-analysis of data from the controversial PACE trial.The Lancet published th...
Read MoreThe Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to...
Read MoreIn wake of David Tuller’s investigation, PACE investigators publish follow up studyLast week, journalist David Tuller published a four-part investigative piece on the 2011 PACE trial, a&nb...
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