MEAction UK welcomes new trustees
Our trusteesMEAction UK is governed by a dedicated board of trustees who bring diverse expertise in ME advocacy, healthcare, research, policy, and charity governance. Our trustees are committed to ens...
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#MEAction UK is Fighting to Protect the Most Severely Ill
The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service.They are dying and they need help. They need a specialised service to be commissioned now! Yo...
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Light Protest Calls Out Government Over the Neglect of People With Very Severe Myalgic Encephalomyelitis (ME)
#MEAction UK projected messages onto locations in central London on 3rd June 2026 to urge James Murray, the Health Secretary to establish specialised NHS services for the most severely affected Myalgi...
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ME Awareness Week 2026
As the 12th May is the first day the newly elected parliament will meet, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week, which this year runs from the 11th...
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#MEAction UK is Fighting to Protect the Most Severely Ill - Join our campaign to lobby your MP today!
The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service.They are dying and they need help. They need a specialised service to be commissioned now! Onl...
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Very severe service planning paused
The DHSC have written to us to say that they have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest. The reasons given by the DHSC incl...
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Survey for new ME blood test launches
MEAction UK is working with the research team at the University of East Anglia (UEA) Medical School to assist in developing a research application to be submitted to the Medical Research Council (MRC)...
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MEAction UK needs new trustees!
MEAction UK is excited to share this opportunity to become part of our Board of Trustees!This is an opportunity to use your skills to support the growth of a grassroots organisation. Candidates should...
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Christmas Holiday Dates
ME support#MEActionME During the HolidaysIt’s that time of year again. The weather turns cold (or hotter for our southern hemisphere friends) and holiday expectations start piling on from commercial...
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#MEAction Scotland's Summary of Health Board Proposals for Funding
Following the Scottish Government's allocation of the £4.5 million of funding for Long Covid, ME and similar conditions, Health Boards were requested to submit proposals outlining how they intended t...
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