MEAction UK is excited to share this opportunity to become part of our Board of Trustees!

This is an opportunity to use your skills to support the growth of a grassroots organisation. Candidates should have a passion for MEAction UK’s mission. Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. If you are curious about becoming a trustee, want to use your skills to help a new charity or know someone who would be a great Board Member, please let us know and share this message! 

In this initial stage, we are seeking people who are able to offer a substantial time commitment, around 2 to 3 hours per week, as we build the charity.  We welcome people with ME, carers and allies with one or more of the following experiences to join the MEAction UK Board:

• Demonstrated leadership in business, charity, government/politics, and/or health research, policy, or care organisations

• Organised at the grassroots level, including events/demonstrations

• Raised money, particularly through online appeals and charitable trusts

• Experience of charity boards

We have a specific requirement for trustees with with the following skills:

• Fundraising

• Finance/Accounting

• Strategic Planning

• Social Media/Marketing/Communication

• Community organisation/campaigning

Person Specification and Requirements for this role:

•  A commitment to the aims and values of MEAction UK 

•  Ability to provide the level of commitment required for this role

•  Experience of charity governance – desirable not essential

•  Ability to work as a team

MEAction UK’s Trustees are involved in overseeing all aspects of the organisation, including operations, communications, finances, and development.  The role of trustee will require a significant time commitment in the first year as we fundraise and employ staff.  We envisage that this commitment will reduce in subsequent years.

MEAction UK operates through two working names, #MEAction UK and #MEAction Scotland.

The Trustee Board currently meets weekly virtually. 

 All trustees will be expected to undergo a DBS check and sign a declaration of eligibility and responsibility.

If you are interested in becoming a trustee for MEAction UK please read our Trustee Role Description https://shorturl.at/tZTMG.

Please fill out the following form if wish to apply for a trustee role with MEAction UK: https://forms.gle/f6vGegvLAmk4qBwZ6

If you would like further information or have any questions, please email