The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service.
They are dying and they need help. They need a specialised service to be commissioned now! Your MP can help by lobbying Yvette Cooper, the new Secretary of State for Health and Social Care.
Yvette Cooper, in her new role as Secretary of State for Health and Social Care is the only person who has the power to set commissioning in motion for an NHS specialised service for the very severe. Yvette Cooper spoke movingly about her years spent bedbound with ME and eventual recovery. Now we want to bring the desperate plight of the most severely affected people who did not recover to her attention.
The need for a specialised service was illustrated by the DHSC ME/CFS Final Delivery Plan published in July 2025 but the start of this process has now been pushed back to April 2027.
Use our Very Severe Parliamentary Advocacy Guide (or our condensed version if you are unable to meet) and write to your MP and demand:
Your MP lobby Yvette Cooper and urge the immediate commissioning of an NHS specialised service for the most severely ill. Tell them that there is no NHS service for very severe ME patients to be referred to and the decision to set up this service lies with the Secretary of State for Health and Social Care.
If your MP is willing to help please email admin@meaction.org.uk, we are happy to provide more information.
This campaign is aimed at getting a service set up for the very severely ill but we have not forgotten people who are mild, moderate or severe and will continue working for all people with ME throughout the year.
Stop the harm, Stop the deaths, Start the service.
Let’s make our voices heard!