Make Your Voice Heard!
Take part in our survey and help advance a diagnostic blood test for ME/CFS
MEAction UK is working with the research team at the University of East Anglia (UEA) Medical School to assist in developing a research application to be submitted to the Medical Research Council (MRC). To help them secure funding we just need approximately five-ten minutes of your time to complete this questionnaire.
The research team has received positive initial feedback on a diagnostic blood test called EpiSwitch® they are developing - see more details below. They now want to build on that by asking you to help with the funding application to the MRC by completing this questionnaire. To build the funding application we need to prove what a diagnostic test would mean for people living with ME/CFS.
The EpiSwitch® test has been designed to diagnose people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The initial study (results published in the Journal of Translational Medicine) was led by UEA in partnership with Oxford BioDynamics. It used cutting edge 3D genomic technology, called EpiSwitch®, to look at how DNA is folded inside blood cells. Just like origami, the shape and folds of DNA control which genes are switched on or off.
The EpiSwitch® test involves a blood sample taken by a health professional and sent to a special laboratory for processing.
Who should complete this questionnaire?
- If you have ME/CFS we want to hear from you! The questionnaire can also be completed by those who care for someone with ME/CFS on behalf of the person they care for. It will take just approximately five-ten minutes of your time.
- Please return your completed survey by Friday 27 February 2026.
By completing the questionnaire you are giving your consent for UEA Medical Team to use the anonymised responses in reports and the MRC application.
The data will be analysed by MEAction UK and provided to UEA Medical School to inform the development of the research application.
Read about the research here:
https://link.springer.com/article/10.1186/s12967-025-07203-w
If you require more information prior to completing this questionnaire please contact uk@meaction.org.uk
Information about the questionnaire
The questionnaire can be saved if you have a Google account but otherwise can't be saved. This is something that we are aware of and are working to change for future questionnaires. We have prepared a pdf of the questions so you can review them before starting the survey.
PDF of the Questionnaire
If you would like to read the questions and think about your answers before completing the survey we have prepared a pdf for you.