Our Trustees
MEAction UK is governed by a dedicated board of trustees who bring diverse expertise in ME advocacy, healthcare, research, policy, and charity governance. Our trustees are committed to ensuring MEAction UK operates with integrity, transparency, and effectiveness in pursuit of our mission.
Our Governance Principles
Our board operates according to the highest standards of charity governance:
- Patient Leadership: People with lived experience of ME are central to our decision-making
- Transparency: We operate with openness and accountability to our community
- Independence: We maintain editorial and campaigning independence
- Diversity: We value diverse perspectives and experiences on our board
- Evidence-Based Decision Making: Our strategies are grounded in research and evidence
- Financial Responsibility: We are careful stewards of our resources
Trustee Expertise
Our trustees bring together a range of skills and experience essential to our work:
- ME Advocacy: Long-standing experience in campaigning for the ME community
- Healthcare Policy: Understanding of the NHS and healthcare policy landscape
- Research and Academia: Experience in biomedical research and academic institutions
- Legal and Regulatory: Knowledge of charity law and regulatory requirements
- Communications: Skills in public relations, media, and digital communications
- Finance and Governance: Professional experience in financial management and oversight
Board Meetings and Decision Making
Our board meets regularly to oversee the strategic direction and operations of MEAction UK. All meetings are conducted with accessibility in mind, recognising that some trustees may have ME or other health conditions.
Key responsibilities of our board include:
- Setting strategic direction and priorities
- Overseeing campaign strategies and activities
- Ensuring financial oversight and sustainability
- Monitoring compliance with legal and regulatory requirements
- Evaluating impact and effectiveness of our work
- Managing risk and safeguarding
Accountability and Transparency
We are committed to being accountable to the ME community we serve. This includes:
- Annual Reports: Publishing detailed reports on our activities and impact
- Financial Transparency: Clear reporting on how donations are used
- Community Engagement: Regular communication with our supporters and stakeholders
- Feedback Mechanisms: Channels for community input and concerns
- Regulatory Compliance: Meeting all requirements of the Charity Commission
Joining Our Board
We periodically recruit new trustees to bring fresh perspectives and skills to our board. We particularly welcome applications from:
- People with lived experience of ME
- Carers and family members of people with ME
- Healthcare professionals with ME expertise
- Individuals with relevant professional skills
- Representatives from underrepresented communities
All trustee positions are voluntary, and we provide full training and support for new board members.
Contact Our Board
If you have questions, concerns, or feedback for our board of trustees, you can contact us through our general contact channels. We welcome input from our community and are committed to responding to queries in a timely manner.