UK Parliament
#MEAction UK’s parliamentary work involves a team of dedicated volunteers and thousands of constituents who have been engaging in campaigning since the organisation’s launch.
#MEAction UK works to educate MPs about the injustice and neglect faced by people with ME, galvanising them to take action with and on behalf of their constituents.
Our Aims
To raise the profile of people with ME with MPs and call on them to support their constituents with ME.
Encouraging MPs to support our campaigns and bring pressure to bear on the government to make meaningful change.
How to set up a meeting with your MP
Meeting your MP, virtually or personally, can help gain valuable support for you and for the ME community. To make it as easy as possible we have put together a step-by-step guide.
Send us any feedback from your MP
If you have received a response from your MP please email us admin@meaction.org.uk and tell us about it. The information you provide will help us improve our overall strategy so that we can better target our campaigns.
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EARLY DAY MOTION 271
On the 6th September, Early Day Motion (EDM) 271 is tabled calling on NICE to overturn their original decision and agree to review and update the guidelines on ME.
UNREST SHOWN IN PARLIAMENT
Our Parliamentary presentation and showing of the film Unrest, directed by the co-founder of #MEAction, Jennifer Brea, helped 40 MPs understand the devastating nature of ME, focused attention on how NICE guidelines had let individuals down and the need for more research funding.
FIRST WESTMINSTER HALL DEBATE ON PACE TRIAL
#MEAction UK ran a campaign to urge MPs to attend the first Westminster Hall debate on the PACE trial and its effects on people with ME Carol Monaghan MP, who secured the debate, raised many valid and important concerns, as did several MPs who intervened during her speech. However, there was a disappointing response from the Minister for Care.
EARLY DAY MOTION 1247 TURNS UP POLITICAL VOLUME
#MEAction UK created tools to to help people encourage their MPs to sign EDM 1247. The motion turned up the heat by acknowledging the detrimental effect of the PACE trial and recognising the work being done by organisations such as #MEAction UK o highlight ME as a physical condition.
SECOND WESTMINSTER HALL DEBATE ON PACE TRIAL
#MEAction worked with other charities to prepare a parliamentary briefing forthis debate. MPs then called for the immediate removal of Graded Exercise Therapy (GET) from the NICE guidelines, as patients consistently reported being harmed from attempting to undergo this treatment.
HOUSE OF COMMONS MAIN CHAMBER DEBATE
#MEAction UK coordinates the community in sending almost 3000 messages to MPs, imploring them to speak up on their behalf and ensuring the human cost of this devastating disease is heard in the corridors of power during this historic debate on the treatment and funding of patients with ME led by Carol Monaghan MP.
The motion was passed unanimously.
ALL-PARTY PARLIAMENTARY GROUP (APPG) ON M.E. REVIVED
Disbanded in June 2017, Carol Monaghan MP led the revival of the group to work on behalf of the 750,000+ people in the UK with ME. Please encourage your MP to attend future meetings of the APPG.
We respond to the DHSC Interim Delivery Plan on ME/CFS
We send a full response to the DHSC's Interim Delivery Plan on ME/CFS outlining the lack of funding and health services for the very severe.We lobby Andrew Gwynne MP
We lobby Andrew Gwynne MP committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay